In 2006 I was suddenly struck down with terrible joint pains and over the next 2 months the pain got worse. I went to see a rheumatologist who could not find a cause.
Soon after I became sicker and I got more and more health problems. I was getting extremely tired and I got more and more pain in my body. I went from doctor to doctor and each time I was told it's a physical health problem.
I had a lot of problems and stress with work; I was unable to work because of my health problems and my work health doctor said I wasn’t ill.
The problem was that no doctor could find anything (only arthritis and liver problems) and they said it was all in my head.
I get no benefits because I ‘do not have a disease’, it's time that ME / CFS become officially recognized as a serious illness (It’s recognised even less in Germany/Netherlands than it is in the UK -Sally).
I was no longer taken seriously, even my friends and family began to doubt whether I was really sick when doctors said they couldn’t find anything wrong.
I found it so bad that everyone thought I was just depressed and not sick! I lost everyone; I have now just my partner and parents.
People who don’t know me well call me lazy and a poser.
The biggest problem is that people see nothing because it is an invisible illness and they believe you are too lazy to work.
I may go into town once in a while and people say it can’t be that bad because I am up and about. What they do not see is that I am very sick for the next 2 weeks and have to lie in a dark room so my senses are not overstimulated.
I have now become so ill I hardly leave my house and almost never do fun activities.
- Extreme fatigue
After more than six years , three rheumatologists, one cardiologist, two psychologists and a number of other doctors, I still have no diagnosis.
7 years ago I was going to the disco every week and I was a very busy person. Now I find pleasure in singing birds and blue sky.
We are not crazy or lazy; we are sick people who want to live!
Never lose hope!