Anyway, I thought I would write about an experience I had in A & E on Wednesday evening. I drove
|*Foggy* Where is Goofy?!|
In between tests, and being prodded and poked, my Dad came and sat with us in the seating area. Now, I've already said that there were only 2 seats. My mum uses a walking stick. She doesn't have a disability but she does have joint pain and uses the stick for balance. I don't have a walking stick.
I was stood for around 20 minutes. I couldn't pull over a chair as beds were being wheeled past that area and space was limited. I was dying on the inside! My head felt like it was going to hit the floor at some point and my spine felt floppy. My mum offered to give up her seat (cue funny looks from the people in the bay next to us). Within 1 minute....yes...1 minute, the people next to us moved along to free up a seat for my mum...who is NOT disabled. I could feel the disapproval from the seat-movers coming in my direction. Could I be bothered to explain that I have M.E, that it is a real condition and that it is a disability? No.
Let me clarify - My mum is in her late 60s and I wanted her to be sat down but in that situation, who would benefit the most from the seat? I would have to drive us home and so needed to preserve energy. As we moved to other areas, more standing was required as there was no seating available. AGAIN, I understand that in an area where crash teams are usually present, seating for visitors is not a priority! I ended up leaning on a sink to try and stay upright! My words became more and more slurred and we had to leave early (12.30 am) to make sure I was safe to drive. My Dad was happy in the knowledge that he was being taken up to a ward for an overnight stay so I didn't feel TOO bad for leaving him!
This is the second seat incident in about a month. The other was during our trip to Winchester. My dad had driven us from Portsmouth to Winchester as he understood that I needed as much energy as possible for my important Foggy-related meeting. We got on the Park and Ride bus to go into the city centre. My Mum could sit in the 'limited mobility' seating but I couldn't. Foggy was not impressed - he wondered why his disabled P.A was not eligible for special seating even though moving around is difficult due to energy and not pain.
I am actually considering taking some kind of prop on similar occasions. Purely because I don't want to experience the stigma surrounding invisible disabilities. I don't think walking sticks or other mobility aides are a badge of honour or anything but at least they are a visible indicator of impairment.
Sally (and Foggy obviously)
p.s Foggy is currently in Orlando on the hunt for Goofy!
p.p.s...Excluding this latest trip - his mileage stands at 9010 miles!