I have been made aware today that some people believe the cause of M.E is known and that sufferers know what their prognosis is. I disagree. This blog will explain and clarify my standpoint.
I believe that a bout of Labyrinthitis (ear infection) was the trigger for my latest bout of M.E. However, it was not the cause of the illness. We don't yet know why one person, let's call her Sarah, gets Labyrinthitis, is laid low for 6 weeks but then gets back to life as normal with no repercussions. But another person, let's call her Tracey, has Labyrinthitis for 6 weeks, is well for a week but then
gets ill....very ill (as happened to me). Tracey's simple ear infection had triggered a debilitating chronic illness. Until we know the reason behind the two different outcomes, we don't know the cause of M.E. I run with the notion that there is something dormant within us, perhaps in our DNA or gut, that is activated/triggered by a virus, trauma, etc. But researchers have not established what that 'thing' is yet.
At the beginning of this blog, I wrote 'my latest bout' - this is my second bout of M.E. I had (undiagnosed) M.E in my teenage years. I became ill virtually overnight (we have never worked out what the trigger was) and it left just as quickly 2 years later. It is due to my first bout that I believe many of us don't have a prognosis. I have no idea if this second bout is lifelong or if it will vanish as quickly as the first bout many years ago. It's a mystery!
This is what the M.E Association say about prognosis - www.meassociation.org.uk
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