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Saturday, 26 December 2015

House Concert!

Hi,

Foggy had the best seat in the house!
Foggy was in Belfast last week. He had been invited to attend a living room concert (you'll see why it's called that when you see the photos!) by Claire Thomson - one of Foggy's favourite supporters. Claire was doing her own fundraising efforts for the M.E Association and wanted to help promote Foggy's next campaign at the same time. Thank you very much for including him (me), I am very grateful.

Claire is a MASSIVE fan of a musician called Nick Howard (http://nickhowardmusic.com). He has just undertaken a number of 'Living Room' concerts for his fans across Europe. Claire was a very lucky lady and was given the opportunity to host one in her (actually, her parent's) house. Claire specified that she wanted any profits to go to the M.E
Reunited with 'Big Foggy'!
 Association. She sold tickets to family and friends and raised £400!! Well done Claire and Nick for helping to raise much-needed funds for a great charity.

I have posted the photos Claire/Claire's brother have kindly passed to me on Foggy's Pinterest page - click the link Pinterest page



There are now 19 days to go before Foggy's next campaign begins....exciting!

Love Sally xx





Saturday, 19 December 2015

Walking in a straight line!

Hi,

In the past couple of weeks, something I wasn't aware of has been highlighted to me by two men in my life. For years, I have known that I have very little spatial awareness, a lack of balance and a feeling of disequilibrium. However, when out and about I always believed that, although I felt off kilter, I was walking in a straight line. WRONG!

My dad constantly tells me I'm wobbling about all over the place but as he is the only person to ever say that to me it went in one ear and out the other (kids eh?!). I have recently made a new friend and we went on a short Christmas shopping trip. I was bumping into both him and my surroundings.
Apparently he watched me walk away from him at one point and I was veering to the left and looked unstable. Because inside my head my whole body feels off balance ALL OF THE TIME I am not aware of when other people can see it!

I am just happy to be able to walk from A to B without any kind of walking aid. I am slightly amused that I have finally found the reason for my constant clumsiness! I have to do a daily bruise count after bumping into things on an all too frequent basis. It's a bit like when I used to go swimming. I could swim 30 lengths of an Olympic sized pool. Yay me! It didn't make me a good swimmer though. My brain couldn't cope with the process of doing a proper breaststroke (like a frog). I did a kind of 'pat my head/rub my stomach' scenario. I did breaststroke arms and kicked my legs. It wasn't the most aesthetically pleasing stroke or the fastest. But, I was very happy to get from one end to the other without any drama!

The next campaign starts in less than a month's time. Please volunteer to either do a sporting challenge or to allow Foggy to join you watching a sporting event.

Love,

Sally xx

Monday, 14 December 2015

Post-Exertion Malaise ....shown in a picture!

Hello!

I am currently in Northern Ireland. While I am away doing some campaign awareness raising I asked Sally to write down exactly how her body feels after taking Patch for a 20 minute walk. Here goes....

Hi,

I am so used to just saying that I feel tired or can't feel my arms and legs properly I made a conscious effort to note down every symptom that I felt post-dog walk. So I sat in a chair and studied my own body from head to foot. I wrote it all down....in case I forgot how rubbish I felt! Please remember that I am a mild sufferer, Post-Exertion Malaise (PEM) is so much worse in people with worse M.E. than I have.


As you can see, P.E.M affects the whole body. As well as these symptoms, fatigue levels increase immensely and I experience a feeling of not being able to function.

PEM is the reason I have chosen Foggy Does Sport as the next campaign theme. It also seemed appropriate to highlight this element of M.E. as the Institute of Medicine have said M.E. should be renamed Systemic Exertion Intolerance Disease. The way our bodies react to exercise/movement are key to understanding the nature of the illness.

Love,

Sally (and Foggy)

Monday, 7 December 2015

Let the promotion begin!

Hello!

Well, I am finally out of my coma and stretching my paws ready for my next adventure. Sally wants to tell you all about being a 'radio star' last week :). Just in case I have Followers who aren't on social media, she is going to tell you what you missed.

I'm off to Belfast this week. A talented musician called Nick Howard is doing intimate concerts in his fan's houses and one of my Followers (Claire Thomson) is incredibly lucky to have him perform in  her parent's house. Here is his website for info - Nick Howard website Claire is donating profits to the ME Association and so is a sufferer AND fundraiser....Claire you are AMAZING xxx Massive Foggy snogs go to Nick too.  I know I am going to have a fab time with Claire...she is one of my biggest fans! Anyway...over to Sally xx

Hi,

So last week I did an early morning chat on the BBC Radio Solent Breakfast Show with Julian Clegg. It was an early start and I went 'on air' at 7.25am. I have added the link below so you can all listen to Foggy and Sally on the radio!  ( I start talking at the 54 minute point). I am hoping that the interview may lead to increased exposure of Foggy's quest and subsequently spread awareness further. I am now a 'Julian's People' person and will be giving regular updates on the radio show. So, it's all good :)
it. It is only on iPlayer for one month so hopefully you manage to catch it in time!

As I said on the radio I would like (non -sufferers) people to contact me asap to tell me if they can help with sporting challenges. Perhaps you run a sports club. do sports yourself or can take Foggy to a sporting event. Whatever, as long as it is sport related I would love to hear from you. Email mefoggydog@gmail.com.

I also did a You Tube clip telling you all about the next campaign. Here it is...Foggy Does Sport

Love,

Sally xx